Tuesday, October 15, 2013

Pump Start!

We are quickly approaching our pump start date!  It is 2 weeks from tomorrow!  So very exciting!  I have stocked up the supply cupboard!  It is totally full!  Candy likes the MIO infusion sets the best and also the Sure - T.

We also have the Enlite sensors and we are so excited to also start the CGM.  Exciting times approaching! 

Please comment with any suggestions you have!  Thanks!


Supply Cupboard
Candy and Dutchess before a hard ride!

Wednesday, October 9, 2013

My viewpoint on high basal dosages! Please comment with your thoughts!!!

  • I wrote this on a post in facebook today and I wanted to document it here as I think I explained my thoughts really well.  Tell me what you think.  I feel very strongly about this and would love to have a great chat about it with others.  Candy is never deprived of anything that she wants to eat.  If she wants candy or fruit or meat she can have it.  I think having her basal insulin (levemir) high like this is what makes her diabetes so flexible and manageable.  





    Alisha Wolf I strongly feel a high basal insulin is the key to solid numbers. We have a HIGH basal dose and our carb ratios are 1:12 , 1:14 and 1:15 for meals. 1:14 or 1:15 for snacks depending on the time of day. The high basal dose keeps Candy's levels very even and the less rapid prevents the major swings of highs and lows.
    16 minutes ago · Like · 1
  • Alisha Wolf Your basal insulin should be 60% of your total daily dosage (TDD)

  • Alisha Wolf I know the fear of going low with a high basal dose is what prevents people from doing it but here's my thoughts on it. If your child has a high basal dose then that insulin is working slowly over the day to keep the levels level. Once you introduce carbs to the body it has the high basal dose to start working on the carbs before the rapid is active. and then on the other side it also keeps your rapid insulin low to prevent hypos. Less rapid less hypos. More basal less highs post meals. Make sense? I thinI have something valid in this finding. I would love to find studies about this. I have been the only one that has made changes to Candy's insulin since dx 1 year ago and I really feel this is the reason for her fantastic results. And at the same time the high basal dose will help with the hormones as well that affect the bg. My girl would go into the 20s during horse shows and exercise but since increasing the basal dose she now only goes around 12s during this time.
    6 minutes ago · Like · 2
  • Alisha Wolf If you do try this just increase SLOWLY and with the advice from your endo team if you are not comfortable doing it on your own. After all these are our kids and we do live with them everyday. Trust your judgement. Oh also when we increased the basal I also decreased/increased the ratios from 1:11 to the ones we have now.....1:12.1:14 & 1:15. Thanks for allowing me to share my experience....
    5 minutes ago · Like · 1

Sunday, October 6, 2013

Pancreum - CGMS Insulin Glucagon - Artificial Pancreas - like OmniPod, C...



Now Wouldn't this be cool have have?

Pump starting and tight ranges!!!

Practice pump and her
pump pal she made
Candy's new pink VEO
Hi thanks for taking the time to read my blog!  It's been a little bit since I have updated here.  Please feel free t comment below as I really enjoy feed back!
 Things have been going really good lately.  We are over a month into school and Candy is doing really awesome.  So proud of that girl!  Exciting news, she is getting set up on the pump on October 23rd.  She is very excited and so am I.  We have decided to go with Medtronic just due to the following reasons:

Animas does not currently have their CGM and we want to try it.  I know they are getting it soon but our pump start date is October 23rd.
Candy's practice pump


Omnipod (Top left)
i-port (bottom left)
Mio infusion set (right side)
Medtronic Veo insulin pum

Omnipod is just too big for Candy as you can see in the photo to the left.

I have one issue about starting the pump...

So Candy's diabetic treatment are as follows:
Morning Levemir 15 Units
Breakfast ratio 1:12
Lunch ratio 1:14
Supper Ratio 1:15
Snack ratio 1:14
Bedtime Levemir 18 Units

Ok so for a total of about 60U of insulin in the average day.
The last 3 days BG readings

Ok so with those numbers we can conclude she is no longer in the honeymoon stage, correct?

Below you will see a couple photos of her BG levels


September numbers
A chart of the last 3 days













All my little Wolves
As you can clearly see her control is AMAZING.  There was one spike in BG and that was when she was doing a 5km run with me the other day.  For some reason she spikes during exercise.  Of course followed by a little low shortly after. 
Candy Wolf
Anyway, what I am struggling with is that I do find it really challenging is I know that when we start the pump her numbers will more than likely be a little crazy.  I am going to struggle with that a bit I think.  How to deal with that after such a great range for so long?

hanging out in the spider web
Also the other thing is going to the endo appointments with numbers like this is almost bad.  Endos desire to find something to correct and we do really well at correcting things on the go, so we don't really have anything to correct.  I noticed some lows that we didn't really like and we noticed when they were happening.  So we changed things and hopefully they will be corrected now.   But what will our endo team say?  I have so many thoughts that are going though my head.  I am glad that I can just type them out here.  

jumping on the bouncy pillow
So in the end, what I am hoping for with the insulin pump, is that it will give Candy a bit more flexibility as far as not worrying about waking up to give her long insulin and also it will save her a bit of time as well due to not needing to dial up, prime and inject insulin every time she want to eat.  I really do hope that our control will be this stable soon after the pump start.  I am so nervous to be going back to square one again!  :-(  Does it really go back to square one when the pump start happens?  And should I be excited about the control Candy has?  Some times I do find it challenging as I know these results are not what is expected from kids. 
Candy and her Pony.  i-port is on her arm

I guess I have to accept that every diabetic person is different and that no two people will ever have the same results and no matter what your results are with D, you just need to be proud and confindant that you are doing every thing you can to make it the easiest and healthiest possible for your D loved one! 

I love you Candy Wolf!!!